The reason I’m writing this now is twofold, firstly after giving my last mental health workshop I suddenly realised I hadn’t once been asked about my mental health during my recent hospital stay, and secondly a talk at the Action Duchenne International Conference I attended at the weekend. I have been working with a group[…]
So Where Am I Now? I’m back at home and spent all of yesterday playing Wolfenstein: The Old Blood with my cousin on my brand new 55 inch TV, and today I intend to take the dogs on a short walk. Although I can’t manage too long in my wheelchair it’s still a long way from being in a hospital bed, so swollen I could barely move, with four drips attached to canulas in both my ankles!
After the drama of the first few days in hospital things did slowly improve, there was still the constant worry I’d have another angioedema episode, or that they would need to cut the open, but there was light at the end of the tunnel and I was starting to think I would really get home soon.
The Next Few Days – Don’t Fear the Reaper After the first night in hospital I was exhausted, in pain and scared, but I would try my best to get through this, I wouldn’t give up. These few days may not be entirely accurate with the order things are in and may jump around a[…]
I hadn’t had an unplanned hospital stay in my entire adult life, I had hoped I would never need to be admitted in an emergency, unfortunately this has all changed.
So the year didn’t start well, a lack of care staff, being treated badly by people I thought were friends or at least cared about me, loss and things generally going badly in 2015. I made a decision to take control of things, sort out my health as best as possible
My final morning at the Royal Brompton hospital and return home.
I didn’t sleep great last night, it was cold and not particularly quiet on the ward, I woke at around 8am and didn’t see the point in going back to sleep so after my ECG and obs we headed out. Today we went to the Natural History Museum, it was a bit too cold to[…]
Today I managed to lay in a bit which I really needed, the hospital is very quiet on weekends and everyone seems much more relaxed. After my obs and ECG I headed out to the museums, typically today it was several degrees colder than it has been so I was rather cold by the time[…]
Today was a lot less busy which I really needed, I was pretty shattered last night and today. I was up reasonably early as the Occupational Therapists were due at ten and I needed to be hoisted into my wheelchair before that. The Occupational Therapists didn’t take too long, they checked my position and gave[…]
I slept very well on the Nippy 3+ only turning a couple of times, I was awake for a bit between 4 and 5 or so but that’s pretty normal even at home.