I decided I really should update my blog with what has been happening recently, I apologise for not updating it sooner, I have no excuse, I’m just lazy when it comes to these things. The biggest update is that I have finally changed care agencies, I have had issues with my agency for years but[…]
At the beginning of the year my nurse and I discussed hygiene, I’m currently stuck in bed so only get a bed bath, we decided to talk to my OT Mrs.K. She was very helpful and we discussed options, we came up with a viable option, a shower trolley which was padded and would fit[…]
A new post on Fighting for my Rights about the NHS Personal Health Budget pilot scheme.
There is currently a move to push Personal Health Budgets by the government to give patients/service users more control see this NHS page. The University of Kent, University of York, Imperial College, London and the London school of economics have joined up for a Government funded research project to assess how well PHB’s work for NHS[…]
Well things have been going very well, no problems to report with my care package from CHC, they have handed control to my District Nurses who will arrange any future updates or assessments. It was quite a hard and long struggle but everything seems this way when dealing with the NHS, I will admit I[…]
Well the meeting has been and gone and I have a reasonable care package until September, when it will be reviewed again. I will post more about the meeting in a future post but the main thing is they agreed to me having a registered nurse, for now. This post is about privacy and AN’s[…]
Welcome to my blog, this first post is to introduce myself and give some general background of why I started the blog. I am 35 years old and have Duchenne Muscular Dystrophy, I have been receiving care in my own home funded by the Continuing Health Care (CHC) department of my local PCT, CHC pay[…]