Triceratops Royal Brompton - Day 6

Royal Brompton – Day 6

I didn’t sleep great last night, it was cold and not particularly quiet on the ward, I woke at around 8am and didn’t see the point in going back to sleep so after my ECG and obs we headed out. Today we went to the Natural History Museum, it was a bit too cold to[…]

Daniel in victoria and albert museum Royal Brompton - Day 5

Royal Brompton – Day 5

Today I managed to lay in a bit which I really needed, the hospital is very quiet on weekends and everyone seems much more relaxed.  After my obs and ECG I headed out to the museums, typically today it was several degrees colder than it has been so I was rather cold by the time[…]

The Earth as a frosted glass marble

Royal Brompton – Day 4

Today was a lot less busy which I really needed, I was pretty shattered last night and today. I was up reasonably early as the Occupational Therapists were due at ten and I needed to be hoisted into my wheelchair before that.  The Occupational Therapists didn’t take too long, they checked my position and gave[…]

A photograph of the front of the Oxford University Museum of Natural History

Oxford University Museum of Natural History

I have been struggling a bit with being in my chair, my chest has been achey when first getting up and I’ve been having to recline after a while as I come over feeling nauseous and like I may pass out, I needed this trip to prove to myself that I was still capable of going further than the local shops and that this wasn’t the symptom of something more serious.

Muscular Dystrophy Campaign – #FastForward

I have done another interview with the local newspaper, this time about the Muscular Dystrophy Campaign’s new Fast Forward campaign, you can read it here – New campaign offers lifeline for Gloucestershire children in need of muscle wasting treatment