Carrie Fisher in a pink/purple tie died top sitting down leaning over and touching my wheelchair tray, me in a grey hat in my wheelchair

Mental Health Awareness

The reason I’m writing this now is twofold, firstly after giving my last mental health workshop I suddenly realised I hadn’t once been asked about my mental health during my recent hospital stay, and secondly a talk at the Action Duchenne International Conference I attended at the weekend. I have been working with a group[…]

Daniel Baker outside B&Q in his wheelchair with his dog Mya

So Where Am I Now?

So Where Am I Now?  I’m back at home and spent all of yesterday playing Wolfenstein: The Old Blood with my cousin on my brand new 55 inch TV, and today I intend to take the dogs on a short walk.  Although I can’t manage too long in my wheelchair it’s still a long way from being in a hospital bed, so swollen I could barely move, with four drips attached to canulas in both my ankles!

Light at the end of the tunnel - Copyright 2016 Daniel Baker - a sepia brick tunnel with light at the end, taken at Hanbury Hall

Light at the end of the tunnel

After the drama of the first few days in hospital things did slowly improve, there was still the constant worry I’d have another angioedema episode, or that they would need to cut the open, but there was light at the end of the tunnel and I was starting to think I would really get home soon.

Picture of the Grim Reaper - Gustave_Doré_-_Death_on_the_Pale_Horse_(1865)

The Next Few Days – Don’t Fear the Reaper

The Next Few Days – Don’t Fear the Reaper After the first night in hospital I was exhausted, in pain and scared, but I would try my best to get through this, I wouldn’t give up.  These few days may not be entirely accurate with the order things are in and may jump around a[…]

Triceratops Royal Brompton - Day 6

Royal Brompton – Day 6

I didn’t sleep great last night, it was cold and not particularly quiet on the ward, I woke at around 8am and didn’t see the point in going back to sleep so after my ECG and obs we headed out. Today we went to the Natural History Museum, it was a bit too cold to[…]

Daniel in victoria and albert museum Royal Brompton - Day 5

Royal Brompton – Day 5

Today I managed to lay in a bit which I really needed, the hospital is very quiet on weekends and everyone seems much more relaxed.  After my obs and ECG I headed out to the museums, typically today it was several degrees colder than it has been so I was rather cold by the time[…]

The Earth as a frosted glass marble

Royal Brompton – Day 4

Today was a lot less busy which I really needed, I was pretty shattered last night and today. I was up reasonably early as the Occupational Therapists were due at ten and I needed to be hoisted into my wheelchair before that.  The Occupational Therapists didn’t take too long, they checked my position and gave[…]