Muscular Dystrophy Campaign – #FastForward

I have done another interview with the local newspaper, this time about the Muscular Dystrophy Campaign’s new Fast Forward campaign, you can read it here – New campaign offers lifeline for Gloucestershire children in need of muscle wasting treatment

 

A drop of water making multicoloured circular ripples

DROP

DROP Logo

As some of you may know I have been working with a newly formed locally charity for just over a year, the charity is now officially registered with the charity commission and I am a trustee, a lot of work has gone into becoming a CIO,  making contacts within Gloucestershire and employing a development worker, we

Guest posts for Not Even a Bag of Sugar

I haven’t been totally slacking off though, my great friend Kylie, from Not Even a Bag od Sugar, convinced me to write a couple of open and honest articles about myself and Duchenne for her blog.  I really am glad I did, I have had such amazing feedback and feel the articles may actually help Read more about Guest posts for Not Even a Bag of Sugar[…]

Wheelchair – Goal Achieved!

As usual I have been slacking with posts, the main news though is I have my wheelchair at last, not thanks to wheelchair services but to charities and lots of very kind people donating. Here are a couple of news articles about it – Echo News Article : Success for man who is able to leave Read more about Wheelchair – Goal Achieved![…]

Cheltenham Fundraising Event

As you probably know I am trying to raise money for a new wheelchair, the NHS are still being stubborn so my neighbours have offered to set up a fundraising event, it has got much larger than I expected and they are doing an excellent job.  I decided I’d tweet some of my followers from Read more about Cheltenham Fundraising Event[…]