I received this letter in June regarding my email correspondence with Wheelchair Services and Social Services, lets be clear I did not excessively email or phone them, probably 3 or 4 phone calls and 33 emails (a lot of which were confirming I had received an email) in about 105 days. As I was unhappy[…]
After a lot of wrangling my advocate from the Muscular Dystrophy Campaign managed to get Gloucestershire Wheelchair Services to consider giving me a wheelchair voucher, this was turned down originally as my “needs may change within five years”, this was based purely the Occupational Therapist’s and Rehab Engineer’s opinions, they have no medical training and[…]
I have just been awarded £2000 by Barchester Healthcare towards my wheelchair, I only need to raise £3000 more and I can buy it! My dog recently had puppies so we are selling two of them which should raise another £1000 towards the cost, I’m also hopeful that Anna from the Muscular Dystrophy Campaign will[…]
I recently made a freedom of information request to NHS Gloucestershire regarding Wheelchair Services, I wanted to try and understand how well they were doing their job, below is the response I received. Information received from NHS Gloucestershire Open Government License From the above it seems only 101 powered wheelchairs were provided in Gloucestershire[…]
I was asked to write an update to my previous article regarding Wheelchair Services by Action Duchenne, you can find it on their Campaign Blog.
I had a visit last week from the NHS regarding the PHB pilot, it was really just a baseline assessment, they will come back again in six months to see if anything has changed, hopefully this means I will be getting my budget soon. The man from the NHS filled out a pretty standard research[…]
A new post on Fighting for my Rights about the NHS Personal Health Budget pilot scheme.
There is currently a move to push Personal Health Budgets by the government to give patients/service users more control see this NHS page. The University of Kent, University of York, Imperial College, London and the London school of economics have joined up for a Government funded research project to assess how well PHB’s work for NHS[…]
As I mentioned, I had sent Ms.Bush an email with a few questions about the power chair they want me to have, as usual the reply (when I finally got it) wasn’t particularly helpful. My first question was about speed, I think that a 6 mp/h chair is safer than a 4 mp/h one for[…]
I had another meeting with wheelchair services on Thursday, this time I invited my neuromuscular advisor along too, mainly so she could see how meetings like this work and how wheelchair services assess someone. They brought in an Invacare TDX SP for me to sit in so they could take measurements and work out what[…]