I received this letter in June regarding my email correspondence with Wheelchair Services and Social Services, lets be clear I did not excessively email or phone them, probably 3 or 4 phone calls and 33 emails (a lot of which were confirming I had received an email) in about 105 days. As I was unhappy[…]
After a lot of wrangling my advocate from the Muscular Dystrophy Campaign managed to get Gloucestershire Wheelchair Services to consider giving me a wheelchair voucher, this was turned down originally as my “needs may change within five years”, this was based purely the Occupational Therapist’s and Rehab Engineer’s opinions, they have no medical training and[…]
I have just been awarded £2000 by Barchester Healthcare towards my wheelchair, I only need to raise £3000 more and I can buy it! My dog recently had puppies so we are selling two of them which should raise another £1000 towards the cost, I’m also hopeful that Anna from the Muscular Dystrophy Campaign will[…]
I was asked to write an update to my previous article regarding Wheelchair Services by Action Duchenne, you can find it on their Campaign Blog.
I decided I really should update my blog with what has been happening recently, I apologise for not updating it sooner, I have no excuse, I’m just lazy when it comes to these things. The biggest update is that I have finally changed care agencies, I have had issues with my agency for years but[…]
As I mentioned, I had sent Ms.Bush an email with a few questions about the power chair they want me to have, as usual the reply (when I finally got it) wasn’t particularly helpful. My first question was about speed, I think that a 6 mp/h chair is safer than a 4 mp/h one for[…]
This blog may be a bit quiet while I go through the complaints process with PALS, I will continue to update my general postings regarding Wheelchair Services but will not comment on the complaints process while it is ongoing.
I had another meeting with wheelchair services on Thursday, this time I invited my neuromuscular advisor along too, mainly so she could see how meetings like this work and how wheelchair services assess someone. They brought in an Invacare TDX SP for me to sit in so they could take measurements and work out what[…]
I have made a few enquiries regarding Wheelchair Services adapting private chairs, all have hit a brick wall, the last person I asked was the secretary to the chief executive of NHS Gloucestershire, I can’t go much higher although I will try, below is the letter of reply regarding this – Not Particularly[…]
Wheelchair Services have contacted me again to arrange another visit in roughly two weeks time, they are going to bring an Invacare TDX SP and a rep from Invacare with them, while this chair isn’t perfect it’s a big step up from the Spectra they had originally decided on. The lesson here is NEVER accept[…]
The meeting with wheelchair services went pretty well, far better than I had expected, the O.T. had a totally different attitude, not sure if it was due to my emails or not, and the rehab engineer (who I’ve known for ages) was great, they will probably end up offering me a decent chair, maybe a[…]